hATTR amyloidosis disease awareness

Amyloidosis is the name for a group of rare, serious conditions caused by a build-up of an abnormal protein called amyloid in organs and tissues throughout the body

Watch our new disease awareness video featuring Daniel O'Donnell, Rosaline Callaghan who is living with hATTR amyloidosis and Professor Aisling Ryan who is a Consultant Neurologist in Cork University Hospital

More About Amyloidosis

Our Resources

Patient Information Brochure

This brochure provides information about hATTR amyloidosis, its symptoms, and what to do if you think you or a family member may be affected.

Track Your Symptoms

Use the checklist to share your symptoms with your doctor

Speak with your Doctor

Bring this discussion guide to your next appointment

Patient Stories

James Coyle's Story

James Coyle and his cousin Pat are from Belmullet, Co. Mayo, where their family has lived and farmed for generations. Both lost their fathers to hATTR amyloidosis, a condition affecting many relatives and highlighting their lifelong inherited risk.

View Video

John & Rosemary’s Story

John and Rosemary, lifelong partners with three sons, discovered John’s hereditary amyloidosis in 2020. With courage and calm, they raise awareness, support family screening, and cherish life’s moments. Despite the diagnosis, they stay hopeful and draw strength from each other as they look to the future.