James Coyle's Story
James Coyle and his cousin Pat are from Belmullet, Co. Mayo, where their family has lived and farmed for generations. Both lost their fathers to hATTR amyloidosis, a condition affecting many relatives and highlighting their lifelong inherited risk.
James Coyle and his first cousin Pat, come from the western most tip of Ireland, Belmullet, Co Mayo, a remote area on the shores of the Atlantic Ocean.
Generations of their families have grown up here, have helped build the community, are educated here, play sport, raise families, and continue to farm the land passed down from their fathers and their fathers before.
Both their fathers, Packie and Seamus Coyle, have died of the genetically inherited disease, hATTR Amyloidosis
James and Pat are 2 cousins living in the West of Ireland with their young families.
In their extended family line, along with a history of emigration, there is a history of hATTR Amyloidosis. James and Pat's grandfather, some uncles, aunts and cousins have passed away from the illness or carry the gene. However, with increasing research into hereditary illnesses, greater awareness and support infrastructure and treatment options, their story is not only about the history of illness in their family, it is as much about the present and the future, and the steps they can take to manage the disease, should they go on to develop hATTR amyloidosis.